It’s wonderful to be here to talk about journey, to talk about the wheelchair and the freedom it bought me.
I started using a wheelchair 16 years ago when an extended illness changed the way I could access the world. When I started using the wheelchair, it was a tremendous new freedom. I’d seen my life slip away and become restricted. It was like having an enormous new toy. I could whiz around and feel the wind in my face again. being out on the street was exhilarating.
But even though I had this newfound joy and freedom, people’s reaction completely changed towards me. It was as if they couldn’t see anymore, as if an invisibility cloak had descended. They seemed to see me terms of their assumptions of what it must be like to be a wheelchair. When I asked people their associations with the wheelchair, they used words like “limitation,” “fear,” “pity” and “restriction.” I realized I’d these responses and it had changed who I was on a core level. A part of me had alienated from myself. I was seeing myself not from my perspective, but vividly and continuously from the perspective of other people’s responses to me.
As a result, I knew I needed to my own stories about this experience, new narratives to my identity.
[“Finding Freedom: ‘By creating our own stories we learn to take the of our lives as seriously as we do ‘official’ narratives.’ — Davis 2009, TEDx Women”]
I started making work that aimed to communicate something of the joy and freedom I felt when using a wheelchair — a power chair — to negotiate the world. I was working to transform these internalized responses, to transform the preconceptions that so shaped my identity when I started using a wheelchair, by creating unexpected images. The wheelchair became an object to paint and play with. When I literally leaving traces of my joy and freedom, it was to see the interested and surprised responses from people. It seemed to open up new perspectives, and therein lay paradigm shift. It showed that an arts practice can remake one’s identity and transform preconceptions by revisioning the familiar.
So when I began to dive, 2005, I realized scuba gear extends your range of activity in just the same way as a wheelchair does, but the associations attached to scuba gear are ones of excitement and adventure, completely different to people’s responses to the wheelchair.
So I thought, “I wonder what’ll happen if I put the two together?” (Laughter) (Applause) And the underwater wheelchair that has resulted has taken me on the most amazing journey over the last seven years.
So to you an idea of what that’s like, I’d like share with you one of the outcomes from creating this spectacle, and show you an amazing journey it’s taken me on.
(Music)
(Applause)
It is most amazing experience, beyond most other things I’ve experienced in life. I have the freedom to move in 360 degrees of space and an ecstatic experience of joy and freedom.
And the unexpected thing is that other people seem to see and that too. Their eyes literally light up, and they say things like, “I want of those,” or, “If you can do that, I can do anything.”
And I’m thinking, it’s because in that moment them seeing an object they have no frame of reference for, or so transcends the frames of reference they have with the wheelchair, they have to think in a completely way. And I think that moment of completely new thought perhaps creates a freedom that spreads to the rest of other people’s lives. For me, this means that they’re the value of difference, the joy it brings when instead of focusing on loss or limitation, we see and discover the power and joy of seeing the world from exciting new perspectives. For me, the wheelchair becomes a vehicle for transformation. In fact, I call the underwater wheelchair “Portal,” because it’s literally pushed me through into a new way of being, into new dimensions into a new level of consciousness.
And the other thing is, that because nobody’s seen or heard of an underwater wheelchair before, and creating this spectacle is about creating new of seeing, being and knowing, now you have this concept in your mind. You’re all part of the artwork too.